A month has passed since my last post and that is for a few reasons:
- I was angry, and anger is draining.
- Thinking about it sucks, and it hurts. And I would rather do other stuff. Like try to take steps to move forward with my life. I need a job, first and foremost. And as I always do when I talk publicly about these things, I fear it will effect my employability. Checking a potential candidate’s social media/Googling them is part of the norm these days, so I get a pang of regret when I post about my mental health issues and experiences. But, then I’m like, “Fuck it.” Maybe it’s a little martyr-y, but I figure if talking about it costs me jobs, oh well. But also please please please hire me.
- Reason #3, I’m cynical. In a way that I don’t think I’ve felt in my adulthood and in a way that makes me feel incredibly lost and small. Advocacy, to me, has given me purpose for the past 5 years. I felt like I cared so, so much that there would be no other option or outcome but for me to change the world in however small of a way. My confidence came from a practical place. I was in my late 20’s when I began developing projects that addressed mental health, exercising my mental health advocacy muscles. And I cared a lot. A lot, a lot. So much so that I spent almost all of my free time outside of my full-time job learning about or thinking about or raising money for a cause that benefited the projects that I was developing. I spent all of 2016 raising money for my mental health awareness project In This Together. I got up at 6am and called total strangers on the east coast (cuz of the time diff.) before I went into work at my full-time job. I called people who worked for mental health non-profits or who were CEOs of corporations that I thought might be interested, or called donors who had given substantial amounts to other mental health related non-profits. During lunch at work I took calls with those people and tried to sell them the mission of In This Together, and I did. In 2016 I raised $12,000 for In This Together, which at the time was just an idea. It was an idea that I pitched and pitched and pitched and believed in very, very much. So, when I say my wanting to change the world as a mental health advocate came from a practical place, I just mean I did some math and figured I could make a difference, for sure, in my lifetime. If I dedicated myself in the same way that I dedicated myself since my late 20’s…if I can make it my full-time job to advocate and create an anti-stigma non-profit, which had been my dream for a while, then I have, like, 40 yearsto give to this cause. And if that’s the case, I thought there was no way I wouldn’t make a dent somehow, if I continued to be as passionate and driven as I had been for the remainder of my working life. But, last year, I realized working the way I worked on In This Together in 2016 is not a sustainable way to work on a thing. Not while keeping myself in a professional bubble and not with having zero experience on how to build a non-profit organization, and not with the HIGH COSTS of hosting a festival every year (I raised $12,000, but spent around $30,000 of my personal funds so that In This Together could become a reality). For a while I had been thinking about how I can re-imagine In This Together, never really letting go of it completely. Right now though, I’m so cynical and I feel so totally and utterly lost. And I gave up. Maybe I should just move to Nebraska and work in a factory, I don’t fucking know. I don’t know what my life is without mental health advocacy, but it’s not possible for me to operate with an advocate heart right now. I feel cynicism deep in my bones. Like nothing I’ve ever felt.
Anyways, my experience as a patient at Dignity Health in Glendale, CA sucked.
There was one nurse, Maria, that I met on my 3rd day in the psych unit. She printed some crossword puzzles for me. The next time I saw her was my second to last day in the unit. We had REAL talks. I told her about how much I loved Oprah, and I vented to her about the staff and about the other patients that were in the unit with me. She told me that, honestly, she was very worried about me when I first got onto the unit, because I seemed really out of it, and because she knew there were predators on the unit. A male patient, specifically, a sexual predator.
This guy was probably in his mid-forties, and crossed almost every boundary with every female in the unit. The most disturbing part to me was that the prominently male staff would “bro out” with him about women and sexuality. I didn’t understand their dynamic at all. The day staff was made up of a couple black men, a black woman, and an asian woman, from my recollection. This male patient, I’ll just call him Thomas, but I’m not 100% sure that’s his name, would have racist outbursts. On one occasion he called a member of the staff “nigger” over and over again. The staff member just took it. No more than an hour later Thomas would be high-fiving the same man that he called a nigger, bullshitting with each other about something or another.
I think the staff is just bored and Thomas was manipulative, also bored, and a chauvinistic pig who always tried to be on the staff’s good side.
This specific manipulative, chauvinistic douchebag, Thomas, tried to “get in good with me” at first, as he did with every female. He kissed me friendily on the cheeks on my first day there and I was like, “okay”. When I was lying down in the hallway he kinda strattled my legs and that’s when I was like whhaaaaaat, no I don’t like. A staff member told him to back off.
I remember a teenager, no older than 17, came onto our unit mid-week. I saw later that Thomas GAVE HER AN ADULT ROMANCE NOVEL AS A GIFT.
Almost every day of the week, my mom, my friend Melissa, and Oliver would come and visit. My friend Oliver brought me gifts, as he does because he is a treasure and an endlessly generous person. He bought me socks with cheese on them and socks with tacos on them.
A day or two later, I saw Thomas wearing those socks on his arms. He wore them inside out, with the sock end part cut out so he could wear them as arm bands. I’m pre-dispositioned to trust people, so though I did notice… half of me was in denial. Like, WHY would that be a thing a person does. So I ignored it. But about a day later it sunk in and I was like, no, this mother fucker stole these from me, and he gave my taco socks to another patient. A very vulnerable patient who did not speak english and couldn’t communicate with others and it made it pretty hard to ask him questions about where he got my socks.
I was roomed with a woman, prolly mid-forties, who was schizophrenic and would NOT SHUT THE FUCK UP. I mean, never. She was always talking. It was the bane of everyone of our existences, staff and patient alike. I was kind to her for the most part, but all-in-all she was an intolerable presence. I shared a room with her. A pillowcase held up with 4 tiny velcro strips was our “bathroom door”. Often times she would undress in our room in front of me.. Eventually, she started stealing my shit as well. She stole my Birkenstock sandals (I had to Google “expensive lesbian sandals” in order to remember the brand of the sandals).
At one point, Thomas and her were in the kitchen area, and he pulled back her tank top and exposed her breast in front of everyone. I made eye contact with the staff member who witnessed this, and he said nothing, did nothing. Ignored it. This was the general vibe of Dignity Health in Glendale, CA. The staff turned a blind eye to sexual indecencies, and could not be bothered with a patient’s needs. Because my stuff was getting stolen, they made me put all of my belongings (which existed messily in 3 paper bags) in their locked closet. And whenever I wanted to change clothes, or get my books or whatever it may be, I had to ask staff to open the closet.
I’m telling you, this staff member Tajh fucking hated me. When you’re a patient, you need to ask for everything. He always seemed so annoyed when I asked for my things from the closet, asked for water, asked to go to the group activity in the other wing of the hospital. It makes me livid when people seem so bothered to do their job, especially when their job is helping people.
When it was visiting hours and my mom, Melissa, and Oliver came, while we were saying goodbyes, Tajh told me that I could not hug my friends.
This same dude told a teenage girl not to cry while she was tearing up in the hallway. I don’t know her story, but she was so sad, and she was not ready for the reality of this place, of Dignity Health. What kind of mental health professional tells anyone, but especially a 17 year old girl, “Don’t cry”? And it wasn’t like a sweet “Oh, don’t cry!” kind of tone. It was definitely not that. If this is our lowest of lows, as people, as patients, why cannot we just cry? For most of my time there, I was too numb to cry. I wish I had a tear to offer, but I was too broken.
I know this is an big claim to make, but I think Tajh pissed in my chicken soup on my second to last day at Dignity Health.
Because of my broken jaw/broken teeth scenario that most people in my personal life know about, a lot of the solid food they served was hard to eat. I mean, I can eat it, but I look a mess when I do. So when I get a bottle of Ensure or mashed potatoes or chicken soup I am like “Score.” I drank the chicken broth out of the soup every time we had it. But the day before my release, after a week of getting all the vibes that Tajh fucking hated me, he served lunch, as he always did, and I opened the lid off the chicken soup and drank a little and…it tasted…not like chicken broth. I got a bad feeling about this, and a literal bad taste in my mouth. I put the lid back on the soup and didn’t touch it. When I returned my tray to the cabinet, for the first time ever…after having 5 breakfasts, 5 lunches, and 5 dinners at the hospital, he grabbed my tray when I put it away and inspected it. He said “Hold on…” and looked over my tray. Never before had he done this. He looked it over for a little while and then put it away, but, why in that one moment when I thought the chicken soup broth tasted maybe like piss….why was that the first time he inspected me tray. It was…interesting and disturbing.
The 6 days I spent at Dignity Health (Still not sure how much this visit cost…if my 2 day stay at the first hospitalization was $4,000, I’m guessing it’s no less than $8,000? For garbage on a stick in a dumpster in terms of “care”) were hell to me. There was so much more to it, but jotting down every single detail at this point is just, not where I’m at. I don’t want to itemize this event to the point where I feel like I’m back there again.
The help is not help. These hospitals have broken my heart into pieces. I want to file complaints, but I just don’t think it would matter or change anything.
So, yeah. I’m real cynical these days. And I’m totally lost. I am not sure where to put my hope. I’m grateful that I know there are people out there who are doing the work to take steps in reforming the mental healthcare system, but I’m just not convinced that it’s a solvable problem. At least not in my lifetime.